Update on Dupilumab: HSE Drugs Group Supports Reimbursement

22/01/2021

Potentially life-changing treatment one step closer for people struggling with moderate-to-severe atopic eczemaĀ  The HSE has advised that the HSE Drugs Group, the body which decides whether or not the Irish government will fund a new medicine through the public health system, supported reimbursement of dupilumab for a defined subgroup of the full licensed indication, at their January 2021...

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Video: COVID-19 Vaccines and Skin Conditions Q&A

20/01/2021

This video was recorded on 14 January 2021 with Professor Anne-Marie Tobin (Consultant Dermatologist at Tallaght University Hospital and HSE Clinical Lead for Dermatology) to discuss some frequently asked questions people with skin conditions have about the COVID-19 vaccines For more COVID-19 vaccine information please visit: www2hseie/covid-19-vaccine/ https://youtube/bE4HtgAG0MU COVID-19...

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IPPOSI Calls for Members of the Public to Apply for Citizensā€™ Jury on Access to Health Information

19/01/2021

A nationwide campaign launched by the Irish Platform for Patientsā€™ Organisations, Science & Industry (IPPOSI) will identify 25 members of the public, broadly representative of the Irish population who will become members of a Citizensā€™ Jury to deliberate on the matter of access to health information What is it A Citizenā€™s Jury is a method of public deliberation that invites a...

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SECURE-AD: Update on the Analysis of COVID-19 Effects on People with Atopic Dermatitis

13/01/2021

Globally, 21 atopic dermatitis patient organisations have become official partners of SECURE-AD, two international COVID-19 surveys for atopic dermatitis (also known as AD or eczema) One survey is for healthcare providers and the other is for individuals with AD What is the SECURE-AD Patient Survey The SECURE-AD Patient Survey allows patients with AD who have developed COVID-19 to report their...

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Survey: New Phase of First Patient-Led Impact Research Study in Dermatology

18/12/2020

The GRIDD project is the first global patient-initiated and patient-led impact research study in dermatology Global Research on the Impact of Dermatological Diseases (GRIDD) was launched in 2017 by the International Alliance of Dermatology Patient Organizations (GlobalSkin) The ISF, a proud member of GlobalSkin, are calling on any adult affected by a skin condition to take part in Phase 3...

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Avoid a Christmas Eczema Flare – Tips from the Experts

17/12/2020

Christmas is a time that many eczema sufferers dread Not because they do not like all the festivities (obviously), but because of potential problems associated with increased environmental exposure to the ever-present fragrance, fireside nights and central heating With COVID-19 restrictions easing to allow home visits, Christmas is a time when family and friends may call We want the house to...

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Is Your Workout Causing an Acne Break Out?

17/12/2020

"New Year,Ā New Me" A common New Year resolution is to start exercising more, so here are our tips to avoid an acne breakout from working out! Benefits of exercise Exercise can help to reduce stress and anxiety, which is important after the fear and worry experienced by many in relation to COVID-19, and the upsetting restrictions of lockdown Regular exercise also promotes better sleep and...

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Psoriasis and Beyond Survey for Moderate-to-Severe Psoriasis

14/12/2020

The Irish Skin Foundation are delighted to collaborate with the International Federation of Psoriasis Associations (IFPA) and Novartis on the launch of Psoriasis and Beyond: The Global Psoriatic Disease Survey, a research initiative to uncover what life is like for people living with moderate-to-severe psoriatic diseaseā€”psoriasis or psoriatic arthritisā€”around the world The primary research...

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Video: Hear from the experts on taking control of your psoriasis beyond your skin

27/11/2020

On November 26th 2020, we held the first webinar in our SkinSideOut series with an expert-led discussion on the health impact of psoriasis beyond just the skinĀ  Psoriasis: Taking control beyond your skin In the video below our panel guests, Caroline Irwin (Psoriasis Patient Advocate), Prof Anne-Marie Tobin (Consultant Dermatologist, Tallaght University Hospital), Dr Catherine Wilkinson (GP,...

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SkinSideOut Webinar – Psoriasis: Taking control beyond your skin

20/11/2020

We are kicking off our 2021 SkinSideOut webinar series on Thursday, 26th November at 4pm, with a wide-ranging discussion about psoriasis Psoriasis: Taking control beyond your skin   In the first SkinSideOut webinar we'll hear about the health impact of psoriasis beyond the skin, and discuss how (and why) you can take better control of some commonly associated conditions...

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Take Action: treatment for severe eczema still not available in Ireland

20/11/2020

UPDATE January 2021 - The ' Take Action' webpage is no longer available while the HSE Executive Management Team (EMT), consider the recommendations before making a final decision on whether dupilumab will be approved for reimbursement The ISF is calling on supporters to ā€œTake Actionā€Ā  Write to your TD for fair access to dupilumab in Ireland! Dupilumab developments The ISF has been...

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Counting the Cost of Childhood Eczema

05/11/2020

Study highlights how care costs extend beyond healthcare utilisation A study recently published in the British Journal of Dermatology (Olsson, Bajpai, Wee et al, 2020) highlights the ā€˜substantial costsā€™ that eczema can impose, with a significant proportion due to informal caregiving and out-of-pocket expenses, illustrating that the cost of caring for a child with eczema can go far beyond...

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