The International Alliance of Dermatology Patient Organizations (also known as GlobalSkin) is inviting the dermatology patient community in Ireland to participate in a unique research project.
The Global Research on the Impact of Dermatological Diseases (GRIDD) project aims to develop a global tool to measure the impact of living with skin diseases on a global scale. Further, it will document patient experiences including the extent of disease impact and burden for patients and their families.
The GRIDD project is currently in Phase 4 – Testing and Finalizing the pilot version of the new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure. The goal of this study is to have 500 adult dermatology patients representing as many different dermatological diseases as possible and from all regions of the globe test the reliability of the pilot PRIDD measure over time.
Adults living with dermatological conditions are invited to take a 10- 15-minute survey – once now, and then again in two weeks’ time. The survey is available in English and is online.
The surveys will include PRIDD and a few other validated questionnaires as well as some questions about you, such as your age, gender, which dermatological condition you have, and in which country you live.
By taking part in the test / re-test of the survey, you will be making an important contribution towards improving the lives of all dermatology patients around the world now and in the future.
The survey is live June 29 – July 29, 2022.
For more information about the GRIDD Project or GlobalSkin please visit – https://globalskin.org
If you need guidance or support about managing a skin disorder, contact the ISF Helpline for free assistance and information.