Patient organisations with resources for people with skin conditions in Ireland

Some skin conditions are associated with other other conditions (for instance psoriasis is sometimes associated with psoriatic arthritis, a slightly higher risk of diabetes, high blood pressure, high cholesterol and metabolic syndrome.  It is also associated with a slightly higher risk of cardiovascular disease (angina, heart attach and stroke)).  The organisations below all have resources which may be helpful to you.

Albinism Fellowship UK & Irelandsupport for skin and ocular conditions associated with albinism

Alopecia Support Ireland support for people affected by alopecia

Arc Cancer Support Servicessupporting all people affected by cancer

Arthritis Ireland – supporting people with arthritis, including psoriatic arthritis

Asthma Society – supporting people with asthma

Coeliac Societysupporting people with dermatitis herpetiformis

COPD Support Irelandsupporting people with chronic obstructive pulmonary disease 

DEBRA Ireland – supporting people with epidermolysis bullosa (EB)

Diabetes Ireland – supporting people with type 1 and type 2 diabetes

Irish Cancer Society supporting people with cancer, including skin cancer  

Irish Heart Foundation – information and resources about heart health and stroke

Irish Kidney Associationsupporting people with renal transplants

Irish Red Cross – Ireland, run free one-to-one skin camouflage training

Marie Keating Foundation – supporting people with cancer, including skin cancer  

Melanoma Awareness Ireland – supporting melanoma patients across Ireland

Melanoma Support Ireland Patients’ Networksupporting melanoma patients in Ireland

Rapunzel Foundation – supporting people with hair loss (alopecia)

The Sharon Rice O’Beirne Melanoma Trust – raising awareness of melanoma skin cancer

 

International skin patient organisations 

Alopecia UK United Kindgom

Altogether EczemaGlobal

Association for Lichen Sclerosus and Vulval Health – United Kingdom

Canadian Skin Patient Alliance – Canada

Changing Faces UK, charity dedicated to helping people who have a disfigurement

Coalition of Skin Diseases USA / Global

Cutaneous Lymphoma Foundation– USA

DEBRA International – Global

Eczema Association AustralasiaAustralia  

European Federation of Allergy and Airways Diseases Patients’ AssociationsEuropean

European Federation of HS Patients’ Organisations – European

Europso – European (Psoriasis) 

Foundation for Ichthyosis & Related Skin Types – United States of America

Ichthyosis Support Group – United Kingdom

International Alliance of Dermatology Patient Organisations – Global, with resources for rare conditions

International Eczema Council – Global

International Federation of Psoriasis Associations – Global

MacMillan Cancer Support– United Kingdom

National Eczema AssociationUnited States of America

National Eczema Society – United Kingdom

National Psoriasis Foundation – United States of America 

National Rosacea Society – United States of America

Pityriasis Rubra Pilaris (PRP) Support Group – Global

Psoriasis Association – United Kingdom

Under the Same SunUnited States of America & Canada (resources about Albinism available in English, French and Swahili/Kiswahili)

Urticaria NetworkGermany / International

Vitiligo Support and Awareness Foundation (VITSAF) Global

 

Dermatology Resources & Information

ISF Campaigns

#AskHowIFeel psoriasis campaign 2018-19

#Five17Eight hidradenitis suppurativa campaign 2015-17

#SaySomething psoriasis campaign 2014-2017

 

Reports

PSO What? Fighting back against psoriais: A Report by the PSO What? Taskforce (2017) – A collaboration led by LEO Pharma and the UK-based Patients Association, in association with the Irish Skin Foundation

Burden of Psoriasis Report: Epidemiology, Quality of Life, Co-morbidities and Treatment Goals (2015) – A collaboration between the ISF, Novartis Ireland and NUI Galway J.E. Cairnes School of Business and Economics

 

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