Some skin conditions are associated with other other conditions (for instance psoriasis is sometimes associated with psoriatic arthritis, a slightly higher risk of diabetes, high blood pressure, high cholesterol and metabolic syndrome. It is also associated with a slightly higher risk of cardiovascular disease (angina, heart attach and stroke)). The organisations below all have resources which may be helpful to you.
Albinism Fellowship UK & Ireland – support for skin and ocular conditions associated with albinism
Alopecia Support Ireland – support for people affected by alopecia
Arc Cancer Support Services – supporting all people affected by cancer
Arthritis Ireland – supporting people with arthritis, including psoriatic arthritis
Asthma Society – supporting people with asthma
COPD Support Ireland – supporting people with chronic obstructive pulmonary disease
DEBRA Ireland – supporting people with epidermolysis bullosa (EB)
Diabetes Ireland – supporting people with type 1 and type 2 diabetes
HS Ireland – supporting people living with HS
Ichthyosis Support Group – United Kingdom & Ireland
Irish Cancer Society – supporting people with cancer, including skin cancer
Irish Heart Foundation – information and resources about heart health and stroke
Irish Kidney Association – supporting people with renal transplants
Irish Red Cross – Ireland, run free one-to-one skin camouflage training
Marie Keating Foundation – supporting people with cancer, including skin cancer
Melanoma Awareness Ireland – supporting melanoma patients across Ireland
Melanoma Support Ireland Patients’ Network – supporting melanoma patients in Ireland
OCD Ireland – information and support for trichotillomania (hair pulling disorder)
Patient Advocacy Service – support to make complaints regarding care in public hospitals
Rapunzel Foundation – supporting people with hair loss (alopecia)
The Sharon Rice O’Beirne Melanoma Trust – raising awareness of melanoma skin cancer
International skin patient organisations and resources
Alopecia UK – United Kindgom
Altogether Eczema – Global network for eczema and atopic dermatitis
Canadian Skin Patient Alliance – Canada
Changing Faces – UK, charity dedicated to helping people who have a disfigurement
Cutis Marmorata Telangiectatica Congenita (CMTC) & Other Vascular Malformations (OVF) – Netherlands / Europe
Coalition of Skin Diseases – USA / Global
Cutaneous Lymphoma Foundation– USA
DEBRA International – Global
Eczema Association Australasia – Australia
European Federation of Allergy and Airways Diseases Patients’ Associations – European
European Federation of HS Patients’ Organisations – European
Europso – European (Psoriasis)
Foundation for Ichthyosis & Related Skin Types – United States of America
Ichthyosis Support Group – United Kingdom & Ireland
International Alliance of Dermatology Patient Organisations – Global, with resources for rare conditions
International Eczema Council – Global
International Federation of Psoriasis Associations – Global
GO – Lichen Sclerosus – Global Organization for Lichen Sclerosus (website pending)
MacMillan Cancer Support– United Kingdom
Melanoma Focus – United Kingdom
Melanoma Patient Network Europe – European
National Eczema Association – United States of America
National Eczema Society – United Kingdom
National Psoriasis Foundation – United States of America
National Rosacea Society – United States of America
Pemphigus and Pemphigoid PEM Friends – UK and International
International Pemphigus & Pemphigoid Foundation – Global
Pityriasis Rubra Pilaris (PRP) Support Group – Global
Psoriasis Association – United Kingdom
Psoriasis Vietnam – Vietnam
Under the Same Sun – United States of America & Canada (resources about Albinism available in English, French and Swahili/Kiswahili)
Urticaria Network – Germany / International
Vitiligo Support and Awareness Foundation (VITSAF) – Global
Dermatology Resources & Information
American Academy of Dermatology – United States of America
British Association of Dermatologists – United Kingdom
British Association of Dermatologists’ Jargon Buster – United Kingdom
British Dermatology Nursing Group – United Kingdom
British Skin Foundation – United Kingdom
Charles Institute for Dermatology – Ireland
DermNet New Zealand – New Zealand
International League of Dermatological Societies – International
Irish Association of Dermatologists – Ireland
Irish Dermatology Nurses Association – Ireland
Irish Food Allergy Network – Ireland
Journal of the American Medical Association – United States of America
National Clinical Programme for Dermatology – Ireland
The Skin Cancer Foundation – United States of America
ISF Campaigns
Take Action: treatment for severe eczema still not available in Ireland (2020)
#AskHowIFeel psoriasis campaign (2018-19)
#Protect And Inspect & Everyone Under the Sun skin cancer prevention campaigns 2017 to date
#Five17Eight hidradenitis suppurativa campaign 2015-17
#SaySomething psoriasis campaign 2014-2017
Reports
PSO What? Fighting back against psoriais: A Report by the PSO What? Taskforce (2017) – A collaboration led by LEO Pharma and the UK-based Patients Association, in association with the Irish Skin Foundation
Burden of Psoriasis Report: Epidemiology, Quality of Life, Co-morbidities and Treatment Goals (2015) – A collaboration between the ISF, Novartis Ireland and NUI Galway J.E. Cairnes School of Business and Economics