The International Alliance for Dermatology Patient Organizations (also known as GlobalSkin) in collaboration with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany) is inviting people living with a skin condition to take part in the Global Research on the Impact of Dermatological Diseases (GRIDD) project.
The survey is open from June 5 to December 31, 2023.
GRIDD aims s to collect global data on the impact of dermatological conditions on patients’ lives.
As an adult living with a dermatological condition, your contribution is vital to this important global research initiative, as you are the expert and your opinion matters. By participating, you will be helping to show clinicians, researchers, and policymakers the true impact of living with your dermatological condition.
The data collected will help to inform areas of need for improved care, better treatment options, and more affordable medicine for dermatology patients globally.
To collect the data, GlobalSkin have developed the new Patient-Reported Impact of Dermatological Diseases (PRIDD) measure, a scientifically sound questionnaire capable of measuring the impact of conditions of the skin, hair, nails and mucosa from the patient’s perspective.
GlobalSkin is looking for 10,000 people to take part in the study by completing an online survey. The survey is available in 17 languages and takes approximately 10 – 20 minutes to complete. You may be asked to complete a shorter version of the survey six weeks after you complete the first one to assist in scientifically validating the new measure.
To be eligible to take part you must:
• Have a dermatological condition
• Be aged 18 or over
If you need guidance or support about managing a skin disorder, contact the ISF Helpline for free assistance and information.