First-in-class eczema drug dupilumab now available in Ireland
Life-changing biologic treatment, dupilumab, is now available to people with moderate to severe eczema in Ireland. The HSE has advised that effective from 1st April 2021, reimbursement of dupilumab will be available under High Tech Arrangements for the treatment of moderate-to-severe refractory atopic dermatitis (AD) in adults and adolescents 12 years and older for whom […]
ISF completes ‘compliance journey’ under the Charities Governance Code
At the November board meeting, ISF charity trustees signed off the organisation’s 2020 compliance record, signaling that board and management have met the obligations set out by the Charities Governance Code. The Code explains the standards which charities are required to meet to effectively manage and control organisations set up for the benefit of the […]
Take Action: treatment for severe eczema still not available in Ireland
** This advocacy campaign ran from November 2020 to January 2021** Take Action campaign page The ISF is calling on supporters to “Take Action”. Write to your TD for fair access to dupilumab in Ireland! Dupilumab developments The ISF has been working to raise awareness and to secure access to dupilumab, a potentially life-changing […]
GlobalSkin Presents the Atopic Eczema Care Priorities Survey
The GlobalSkin Atopic Eczema Community Since 2018, GlobalSkin has been collaborating with patient leaders in the atopic eczema community with the goal of significantly and measurably enhancing access to high-quality, coordinated, and innovative care for people living with atopic eczema. The GlobalSkin Atopic Eczema Community has decided to develop a core document of patient care imperatives […]
Make skin visible in Election 2020
ISF calls on voters affected by skin conditions to ‘Make Skin Visible’ in Election 2020 Election 2020 will be held on 8th February. Over the next few days and weeks your election candidates will be calling to your home to ask for your support. This is a great opportunity to highlight the need for more […]
All hubs and no spokes? Equity of access for dermatology patients
Research needed to reveal impact of “distance-decay” on health utilisation The Irish Skin Foundation (ISF) has called for research into the effects that a household’s distance from specialist dermatology services is having on patients living with chronic inflammatory skin disorders such as psoriasis, atopic eczema and hidradenitis suppurativa. “We know anecdotally from the ISF Helpline […]
Thank you to all who answered the “Living with Atopic Eczema” survey
We want to thank everyone who participated in the “Living with Atopic Eczema & Eczema in Ireland” which we ran from September 2018 to March 2019; we had over 450 responses which was a tremendous level of engagement. In the coming months we will be writing up our findings and hope to publish them in the […]
A plan for waiting times? HSE publishes Scheduled Care Access Plan 2019
In an effort to tackle waiting times the HSE has published the Scheduled Care Access Plan 2019 which specifically identifies dermatology for extra resources. This move may help people with psoriasis, HS, atopic eczema, skin lesions and many other skin conditions access care more quickly. Under the plan the HSE intends to increase total number […]
Introducing the Irish Skin Foundation’s new brand identity
We are proud to announce the launch of the charity’s new logo and brand as part of the evolution of our work supporting people with skin conditions and raising the profile of skin disorders in Ireland. As our work has grown and evolved over the years, we felt it was time for a change. The […]
Hospitals need to be more sympathetic to our needs
Calls to the ISF Helpline reveal what’s most on dermatology patient’s minds In the first of our three-part blog series called “What Patients Want” we begin by taking a look at our hospitals and what you say about them. Most skin disorders are managed by GPs, but a significant number of people need hospital care. It […]
