Survey: New Phase of First Patient-Led Impact Research Study in Dermatology
The GRIDD project is the first global patient-initiated and patient-led impact research study in dermatology. Global Research on the Impact of Dermatological Diseases (GRIDD) was launched in 2017 by the International Alliance of Dermatology Patient Organizations (GlobalSkin). The ISF, a proud member of GlobalSkin, are calling on any adult affected by a skin condition to […]
IPPOSI Calls for Members of the Public to Apply for Citizens’ Jury on Access to Health Information
A nationwide campaign launched by the Irish Platform for Patients’ Organisations, Science & Industry (IPPOSI) will identify 25 members of the public, broadly representative of the Irish population who will become members of a Citizens’ Jury to deliberate on the matter of access to health information. What is it? A Citizen’s Jury is a method […]
SECURE-AD: Update on the Analysis of COVID-19 Effects on People with Atopic Dermatitis
Globally, 21 atopic dermatitis patient organisations have become official partners of SECURE-AD, two international COVID-19 surveys for atopic dermatitis (also known as AD or eczema) . One survey is for healthcare providers and the other is for individuals with AD. What is the SECURE-AD Patient Survey? The SECURE-AD Patient Survey allows patients with AD who […]
Psoriasis and Beyond Survey for Moderate-to-Severe Psoriasis
The Irish Skin Foundation are delighted to collaborate with the International Federation of Psoriasis Associations (IFPA) and Novartis on the launch of Psoriasis and Beyond: The Global Psoriatic Disease Survey, a research initiative to uncover what life is like for people living with moderate-to-severe psoriatic disease—psoriasis or psoriatic arthritis—around the world. The primary research objective […]
New Report Documents Sunburn, SunSmart Behaviours and Sunbed Use by Children in Ireland for the First Time
A new report titled, Children’s exposure to ultraviolet radiation – a risk profile for future skin cancers in Ireland, which was published on June 17th 2020, presents findings on children’s exposure to ultraviolet (UV) radiation from the sun and sunbeds, UV skin protection behaviours, and sunburn. High-risk groups: children and young people The report was […]
ISF Partner of SECURE-AD Patient Registry*
The Irish Skin Foundation is delighted to be a partner of SECURE-AD, two international COVID-registries for atopic dermatitis/eczema. One registry, is completed by healthcare providers and the other registry is completed by individuals with this skin condition. Atopic dermatitis and COVID-19 registries Atopic dermatitis (AD) also known as eczema, is a common chronic inflammatory skin […]
COVID-19 dermatology registries*, Global Skin townhall webinar May 21
The International Alliance of Dermatology Patient Organisations (IADPO) also known as Global Skin, of which the ISF is a founding member, convened a webinar titled: Understanding COVID-19 & its impacts on dermatology patients. Representatives from patient organisations around the world attended this live ‘townhall’ style meeting which hosted an excellent presentation by Dr Esther Freeman, […]
New survey for psoriasis patients to self-report experiences of COVID-19
PsoProtectMe is a new initiative by PsoProtect for psoriasis patients to self-report their COVID-19 experience. The Irish Skin Foundation is delighted to be a partner of PsoProtect, an international registry for health care providers to report outcomes of COVID-19 in individuals with psoriasis. PsoProtect has released data from over 100 cases reported by clinicians globally, […]
The Impact of Mindfulness-Based Cognitive Therapy (MBCT) on Psoriasis
Dr Alan Maddock, lecturer at Queen’s University Belfast, discusses ‘The impact of Mindfulness-Based Cognitive Therapy on Psoriasis’. According to new data released by the Global Psoriasis Atlas, an estimated 82,900 people in Ireland live with psoriasis. As well as managing the physical symptoms of psoriasis, patients can experience a range of emotional, psychological and social […]
International registry of outcomes for COVID-19 and people living with psoriasis
ISF joins efforts to support a new international initiative, specific to psoriasis, has been set up as response to the COVID-19 pandemic PsoProtect is an international registry (i.e. a sophisticated database that will provide a real-world view health information like clinical practice, patient outcomes, safety, and comparative effectiveness) for health care providers to report outcomes […]
