Video: HS Wound Care Management
HS AWARENESS WEEK The 3-9 June marks HS Awareness Week, and to support this, the Irish Skin Foundation (ISF) have launched a new information video resource for people affected by Hidradenitis Suppurativa (HS) . The video resource, presented by Kelly Impey, Registered Advanced Nurse Practitioner, provides information on the causes of HS; common sites on […]
Medical Independent: SkinSideOut – Addressing key skin concerns
This below article, “SkinSideOut – Addressing key skin concerns“, written by Priscilla Lynch, was published by the Medical Independent on 11th June 2023. Priscilla Lynch reports on the Irish Skin Foundation’s recent information day. On Saturday 22 April, the Irish Skin Foundation (ISF) hosted SkinSideOut, a skin health information and exhibition event in O’Reilly Hall, University […]
Survey: Participate in ground breaking research
The International Alliance for Dermatology Patient Organizations (also known as GlobalSkin) in collaboration with researchers at Cardiff University (UK) and University Medical Centre Hamburg-Eppendorf (Germany) is inviting people living with a skin condition to take part in the Global Research on the Impact of Dermatological Diseases (GRIDD) project. The survey is open from June 5 […]
Survey: Help us shape and focus ISF resources
The ISF offers trusted support through our Ask-a-Nurse Helpline and in our videos, booklets, social media posts, and website articles. It is important that our content reflects the experiences and needs of people living with or caring for people with skin conditions. Share your views and insights. Take this short survey to help us to […]
Call for people with HS who may wish to take part in HSE Living Well Programme
Calling all those living with Hidradenitis Suppurativa (HS)! Would you be interested in taking part in the HSE Living Well Programme, designed to help manage living with a chronic condition? There’s still time to register before the first session of the course starts on Tuesday, 21st September. Registration details below. What is the Living Well […]
Watch our webinar ‘Understanding Hidradenitis Suppurativa (HS)’
Did you miss our webinar on, Understanding Hidradenitis Suppurativa (HS)? No problem, watch it below. In this SkinSideOut webinar, on HS Awareness Week 2021, Consultant Dermatologist, Prof Brian Kirby spoke about current treatments for HS and what’s coming down the line and long-time HS patient advocates, Barry McGrath and Suzanne Moloney about their journey to […]
Self-Care Tips for Hidradenitis Suppurativa
Hidradenitis Suppurativa (HS) Awareness Week takes place the June 3-9, this year. The following general measures can be very helpful in the management of Hidradenitis Suppurativa (HS). 1: Stop smoking Research has shown that people with Hidradenitis Suppurativa (HS) are far more likely to be smokers. Smoking is thought to worsen HS and stopping smoking […]
Tips to Prepare for a Remote/Virtual Hospital Consultation
The ever-evolving COVID-19 situation has had an impact on society in many ways, which has meant that hospitals and dermatology departments have had to change the way they interact with their patients. In order to ensure ongoing treatment and continuity of care, patients may be offered a telephone or video call, instead of face-to-face appointments. […]
Research Call for Hidradenitis Suppurativa (HS) Everyday Wound Care User Study
June 1st – 7th marks Hidradenitis Suppurativa (HS) Awareness Week globally, and is an opportunity to raise awareness of this inflammatory skin condition, estimated to affect at least 1% of the Irish population. The Clinical Research Platform is currently recruiting people living with Hidradenitis Suppurativa (HS) to test a wound dressing product specifically designed for use in that condition. […]
Irish research highlights that living with HS can have a significant impact on quality of life
HS Awareness Week June 1st – 7th marks Hidradenitis Suppurativa (HS) Awareness Week globally, and is an opportunity to raise awareness of this inflammatory skin condition, estimated to affect at least 1% of the Irish population. Irish research A recent 2020 Irish paper in Dovepress, authors Mac Mahon et al. reported on a study of […]
